SMHS hospital sans life-saving drugs: No country for hemophilia patients
Srinagar, Jan 8:
When 27-year-old hemophiliac Yasmeen (name-changed) bled from her mouth, she
immediately rushed to Day Care Centre at SMHS Hospital Srinagar, only to find
that it has run out of medicines.
“After an hour
long wait, the doctor told me that the supplies haven’t been restocked and we
should come after a week. I felt deflated on hearing this. It seemed as if
death stood seconds away from me,” she said
Yasmeen is among
100 hemophilia patients including children at SMHS Hospital who are susceptible
to life threatening diseases due to non- availability of drugs.
Hemophilia is a
rare genetic disorder that keeps blood from clotting and leads to excessive
internal or external bleeding. The
treatment is very expensive. A single dose of the clotting factor costs from Rs
4,000 to Rs 24,000.
“Majority of the
patients, particularly children, require three doses of the clotting factors (factor-VI,
VIII and IX) every week to prevent internal injuries and deformities in the
bones. There are some patients who need to take the factor two times a day,” an
official at SMHS Hospital said.
There are around
327 patients (310 males and 17 females) registered with the Centre — a lone
tertiary-care facility in Kashmir.
Hemophilia Society of Kashmir Syed Majid Qadri said patients are without
anti-hemophilia drugs like Factor IX, Feiba, and Wanvilibrand Factor.
Medical College Srinagar has failed to procure these drugs for the needy
patients despite obtaining no-objection certificate (NOC) from Jammu and
Kashmir Medical Supplies Corporation. The authorities are playing with the
precious lives of patients,” he said.
Qadri said due
lack of anti-hemophilia drugs, patients are given FFP which has resulted in
multiple ailments, infections and deformities.
“The doctors posted at Day Care Centre of SMHS
Hospital have no specialization to tackle the problems of hemophilia patients.
They are violating the guidelines of World Federation of Hemophilia (WFH) as
patients are provided less dosage than the recommended norms,” he said.
inappropriate treatment, imbalanced dosage, inefficient prescription and
unnecessary referral of patients, to other units was a clear violation of WFH
“Day Care Centre
building has been converted into a store, leaving hardly any space for
treatment of hemophilia patients. The laboratory has been occupied, making
hardly any space for the required machinery, which results in improper
analysis. Physiotherapy equipment is rusting in the boxes”, he said.
Superintendent, SMHS Hospital, Dr Nazir H Chowdhary said they are already in
the process of replenishing the drugs. “The medicines will be made available to
them in two to three days,” he said.
HS hospital sans life-saving drugs: No country for hemophilia patients